Baby Monroe / Posting for a friend

[usirocksit1]

Hi Theme Park Review Fam Bam,

 

My friend posted this on my facebook wall the other day and I thought I should share.

 

"hey matt, could u spread the word for one of aiden's friends we met at shriners in philly...this is from her mom: My name is Nikkee Daniel and my daughter Monroe is 6 months old. She has a very rare genetic condition called Escobar syndrome. It is one of the 400 types of Arthrogryposis Multiplex Congenita (AMC). There is a convention in Kansas City, MO July 6-10th. I am trying to raise money for us to attend so I can learn more about her condition and treatment options. Monroe is unable to open her hands, bend her knees, raise her arms above her head and has a tracheostomy all due to her condition."

 

Such as small baby. You can read more about her at http://www.dearmonroe.org/

 

You can donate at this website: http://www.gofundme.com/54sa8

 

Their goal is only $2,000.00 to cover the expenses for the convention, which leads me to believe that the medical and living expenses are prominent enough to where they don't have the extra cash to go.

 

My friend is also coordinating a baby clothing auction to help raise money..... can be seen here: http://www.facebook.com/media/set/?set=a.165077906890900.46377.100001660765967